About the PSP
What is a Priority Setting Partnership? Also needs an explanation of what genomics is about and why this project is genomics focused
Why this PSP matters (focus on sickle cell, carriers, and genomics)
Who is involved (JLA, SCS, GEL, lived experience reps, healthcare professionals, Information specialists)
The PSP Process
- Overview of the process (Step-by-step graphic or timeline: survey > review > prioritisation > final workshop)
- FAQ section: what we’re doing, who can take part, how decisions are made
Lived Experience & Community Voices
- Testimonials from participants
- Short videos, quotes, or spotlight stories (especially young people, men, carers)
- Highlights from social media campaigns or IG Lives
How the Community is Involved
- Role of the Steering Group
- Working group info (optional)
- Evidence review and piloting updates
- How we ensure inclusivity
What’s Next
- Key dates/timeline (e.g., second survey, final workshop)
- How priorities will be shared and used in future research
- Opportunities to stay involved/ future updates
Contact & Questions
- Email contact for the PSP team
- Link to sign up for updates/newsletter
Key Actions Users Should Be Able to Take from PSP Pages
- Watch a short explainer video
- Contact the team with questions or accessibility needs
- Read or FAQs