Helpline For Care
Sickle Cell Society Helpline
Our Helpline Service provides confidential information, guidance, and emotional support to individuals and families affected by sickle cell living in the UK.
Do you have a sickle cell disorder or know someone who does? Are you looking for information, advice or support?
Helpline Service
We are currently having a challenging time with our phoneline. While we work with the tech team to resolve this, please email us if you have any difficulties getting through.
Sickle Cell Society Helpline
Our Helpline Service provides confidential information, guidance, and emotional support to individuals and families affected by sickle cell living in the UK.
Do you have a sickle cell disorder or know someone who does? Are you looking for information, advice or support?
Helpline Service
We are currently having a challenging time with our phoneline. While we work with the tech team to resolve this, please email us if you have any difficulties getting through.
What can we advise on?
We understand that sickle cell disorders uniquely affect people, and can manifest into a range of further conditions. We also understand that a sickle cell disorder affects the wider social support network.
That’s why we support any individual affected by sickle cell, including family members, friends, employers, teachers and healthcare professionals.
- Managing a sickle cell disorder
- Social and welfare issues
- Health and education provision
- Housing and benefits entitlement
- Employment support
- Emotional support
- Advocacy
- Accessing services
- Signposting to external agencies and support groups
What can’t we advise on?
Although we can provide information and guidance on managing a sickle cell disorder, we are not medically qualified and are therefore unable to comment on individual health issues. We can, however, explore your options and signpost you to your nearest sickle cell and thalassaemia service.
We cannot provide professional legal advice or legal representation, however we can signpost you to organisations that may be able to help.
Access the Helpline
You can also write to us:
54 Station Road,
London,
NW10 4UA
Prefer email? We aim to respond within 5 working days.
CONFIDENTIALITY
All information shared via telephone and email is confidential. However there are limits to our confidentiality. Read our confidentiality policy.
DISCLAIMER
The helpline service is not a substitute to medical care. Please contact your GP, haematologist, or sickle cell clinical nurse specialist if you have any concerns about your condition or treatments.
HAVE YOUR SAY
We aim to ensure the best possible helpline experience. In order to achieve this, we rely on your feedback. If you have recently spoken to a helpline officer via the phone or email and would like to comment on how we dealt with your enquiry, please do fill in our short survey. This survey is anonymous, and is made up of a few questions about why you called, how you would rate the support or information received, and whether we helped to make a difference.
Thank you for your help!
Read our complaints and feedback process.
How We Can Help
Who Can Call:
· Patients, parents, caregivers, friends, anyone in need, medical/educational professionals
What to Expect When You Call:
Friendly, trained support staff
All conversations are confidential
No cost to use
What We Offer:
Emotional support
Information about sickle cell disorder
Help finding local resources
Advocacy for NHS / Employment / Housing / Education / Benefits concerns
We may need an area for people wanting to request a stall or a speaker for events where we can put a hyperlink so they can download the speaker request / event request form.